Dear Friends,
I’m back from Physical Therapy today, where I started with a lot of energy, and they worked me hard and I’m glad they did, and I’m also glad I’ve been sitting down for the last hour. PT has made a strong difference for me, helping me to keep moving when I haven’t really felt like it.
Thursday, February 1, was my 12th infusion (out of 12) at the clinic, followed as always by 44 hours on the small portable infusion pump that gives me an additional 110 milliliters of chemo. It pumps at 2.5 milliliters (that’s about half a teaspoon) per hour. It pumps in quite slowly. That process finished up Saturday morning, and we gave the pump back. So, over the next several months, I should begin to recover from chemotherapy.
They ran an experimental blood test on me, which looks for cancer DNA in a blood sample. They found none. It would be bad news if they had found some rogue cancer cells circulating through my system, and they did not. So that’s quite hopeful. But it actually means we don’t know. We don’t know there’s more cancer; we don’t know there’s no more cancer. It’s like if we inspect one corner of the living room and find it clean: we can’t conclude that every corner of the house is clean. Several friends have suggested that we should simply drain all my blood and test it all, but I feel like there would be side effects from that. I’ve got scans coming up later this month, and follow up appointments, and: we’ll see. We won’t know until we know.
I continue to have problems with neuropathy and balance. The neuropathy affects my hands and feet, but it’s mostly centered on my fingers, making my finger tips feel cold and numb. Typing is challenging, because I can’t feel the tiny nubs on the home row of keys. I often look at the screen and discover I’ve typed a line of random letters. I haven’t been able to play guitar for the last few months, because I can’t feel accurately where my left hand is on the strings. It may get better on its own, as the chemicals slowly leach their way out of my body, but in the meantime I’ve got an appointment with the neuropathy clinic in a couple of weeks, to see what they can do.

I’ve had many near misses on falling. I don’t have a good sense of balance at all. We’re working on that in PT. The oncology doc said that it may be due to the neuropathy in my feet, making it hard for me to feel the floor. I’m doing my best never to try to stand or walk without something to hold on to. My walker has become a constant companion. Micaela drives me to all my appointments.
Thanks so much for your ongoing support and prayers, emails and letters. They always brighten my day. Many many blessings to you all.
In Jesus’ love –



3 responses to “Prayer Letter 14”
Jay, The blood test results are hopeful news. I continue to pray for you, and will add all these concerns. I had cataract surgery this morning and cannot see out of the eye. which concerns me. The doc said just to wait and it will hopefully clear. I will see him again on Monday. This is short because I keep typing wrong letters–my balance is also off. Thankful for your friendship–and the Lord who sustains us in all of life’s challenges! Anne
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I think that the blood test results are great!! Don’t look for bad news! lol
I have a brother-in-law with really terribly neuropathy who takes THC for it? I think that’s right — it’s for the pain. And for him, it helps.
As to the difficulties typing, try using your voice to type? In this day and age, it is certainly an option should you choose to avail yourself of the technology.
Always so good to hear that you are making positive progress!! Remember — baby steps!! And God bless you and Micaela!
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Congratulations on #12 out of 12, and great news on the blood tests. I hope and pray the neuropathy subsides so the feeling returns to fingers and feet. I’m sure that will help with balance. The preaching seminar you did years ago in Garden City eventually led to me being part of the preaching pool for Leoti, Tribune and Lakin.Which led to other things. Next Tuesday, at the PSK meeting in GC, I will be installed as Moderator. You are part of my “quilt of people,” and I enjoy your writing. Mary Buchele
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